Queen’s University Research Study

Research Study: “Let’s Talk Period” for Hemophilia Carriers: The Use of Online Resources and Social Media to Improve Care: Part 2

Queen’s University is conducting a research study that aims to develop evidence based educational materials focused on when and where hemophilia carriers should seek care for bleeds and about abnormal bleeding symptoms experienced by hemophilia carriers.

You will be asked to provide knowledge and input to develop the content for these educational materials using the recently published WFH (World Federation of Hemophilia) Guidelines for the Management of Hemophilia, 3rd Edition. If you are interested in participating, you will be invited to join a Working party with other health professionals and members of our research team for a 1-hour session conducted electronically over Zoom video conferencing.

If you are interested in participating in the study, please email or call Julie Grabell at grabell@queensu.ca or 613-533-6000 x 75223. She will be able to answer any questions you might have regarding the study.